Publication of a research study exploring resilience in family carers of adults with an intellectual disability, funded by the National Disability Authority, was announced on December 12th. The project was led by Dr Attracta Lafferty of the School of Nursing and Midwifery in University College Dublin, with assistance from Bianca Van Bavel of UCD and input from Dr Laurence Taggart of Ulster University. Data for the study were gathered through survey questionnaires distributed by the Department of Social Protection to recipients of Carer’s Allowance who were caring for a young adult with an intellectual disability. Family Carers Ireland staff and members were heavily involved with the study. Diarmaid O’Sullivan and Paul O’Mahoney from the Smithfield office were involved in the promotion and conduct of the study, and members of FCI’s Parents of Adults with an Intellectual Disability (PAID) subgroup volunteered for ‘cognitive interviewing’ which served to review the questionnaire’s suitability, ensuring it was clear, comprehensible and easy to fill in for any carers who chose to do so. Lucan-based carer Damien Douglas, Chair of the PAID group, and FCI Head of Communications Catherine Cox also sat on the Project Advisory Committee for the study.
The full research report, Family Carers’ Experiences of Caring for a Person with an Intellectual Disability, is available on the NDA website here.