Brenda says the lack of support from the State has been very hard to stomach:
“The financial burden on us is huge. My husband has a job, he works very hard. He’s an electrician so that means that we don’t qualify for any grants. We have a huge network of people that help us to fundraise.”
Brenda, who was our Carer of the Year in 2018 and continues to be powerful advocate for all family carers, describes Fionn as a very special little boy:
“He has a way with people and I think once you meet him and connect with him, you’ll never forget him”.